Having lived experience and knowing people with lived experience are really effective way of researching social conditions—unavoidably, whether or not you want to—and lead to rich theory.
Compare what activist groups do with the purer model of social research in which you have a central institute, running surveys and writing supposedly “independent” reports, making policy proposals. The latter leads to flat, superficial theorising if done without lived experience.
In activist groups with rich communication (e.g., chat groups and regular meetings) the “data collection” is continuous, doesn’t feel like research, and is inseparable from day-to-day individual support and activism. But traditional reports can still be important to get media and government attention: “What’s a Nice Girl Like You Doing in a Job Like This?” is a good example of research drawing on lived experience and traditional research skills.
To unstick social research requires holding onto all methodological advances whilst radically opening up research to citizen control. Sometimes getting a good estimate of the population prevalence and correlates of some form of oppression are important to highlight severity and likely causes. Advances in techniques and software for qualitative analysis can be useful too and ensure best use is made of material.
Academics without lived experience running convenience sample qualitative studies with small numbers of people and pretentious methodology are fundamentally limited in what they can discover. But the same sample from lived experience and lived theory is very different.
There are many professional researchers with lived experience (Max Weber, 1864-1920, was one, with experience of psychiatric inpatient stay). But higher education is a hostile environment now—you couldn’t design a better system to reward junk research and cause burnout if you tried. Such a system is deeply challenging for people who are oppressed.
Your various identities, privileges and oppression (due to “race”, man/woman/non-binary, cis/trans, wealth, monogamous/poly, how valued your labour skills are, property ownership, disabled, etc.) fundamentally constrain who will answer your calls for research participants, what social phenomena you can understand, who will listen to what you discover. They literally change what you see and hear and what you can research. (Epistemic relativism is a useful concept to make sense of this.)
Some researchers break free of these constraints thanks to contradictory locations; for instance, being articulate and well connected can be used to resist a position of oppression. Though then you can end up being attacked for having helpful privilege, even by “your own side”.
Academics with more secure positions can help, for instance:
- Support PhD students and colleagues who are oppressed in various ways: grants, decent pay, and mentoring are helpful.
- Instead of “giving voice” to people through interview excerpts, give a platform.
- Cite blog posts and reports from activists with lived experience.